Autism Attacked Alternatively
What Parents and Society Should Learn from The Horse Boy
Thursday, November 19, 2009
Though no one knows exactly why, it's pretty clear that more kids are being diagnosed with autism these days than ever before. The developmental disorder - which impairs social interactions, leads to repetitive behavior, and results in seemingly senseless tantrums - manifests itself in myriad ways, with severity ranging from fully functional to nearly catatonic. But while the disease certainly troubles the afflicted, the parents of an autistic child must shoulder an equally challenging burden.
Rowan
That's what journalist Rupert Isaacson learned when he and his wife, Kristin, realized their son Rowan had autism, and began to confront his symptoms-inability to make friends, peculiar play habits, incontinence, tantrums - with as many methods as possible. One day, after years of being kept away from the horses that surround their Texas home, Rowan snuck out and found his muse in a horse named Betsy, who seemed to bring the boy a rare sense of comfort and joy. But Rowan's problems progressed, so Rupert sought out alternative therapies, and eventually convinced the family to head to Mongolia, where they would ride the steppe on horseback in search of shamans who could treat the disease. It's hard to believe that the outlandish scheme - which is the subject of the thought-provoking and uplifting documentary The Horse Boy - actually paid off, but today Rowan is a much more independent and happy.
Rupert Isaacson recently spent a few minutes chatting about the experience in anticipation of the film's screening next week at UCSB's Campbell Hall.
How is Rowan now now? He's doing incredibly well. He's two grades ahead academically, and that's something we never thought we'd see. He's still autistic, but it's as if the dysfunction that came along with his autism went away. He has a ton of friends and most of them are: for want of a better word, normal. He doesn't have problems making friends.
How much of his recovery do you think was due to the trip to Mongolia? He was subject to these terrible dysfunctions before we left, and when we came back he didn't have them - the incontinence, the tantrumming, not being able to make friends. Those dysfunctions disappeared either during or right after those ceremonies.
Do you credit the ceremonies with fixing Rowan? I think that the shamans, if you go to the place where they're working at the village level, they are very good at what they do. They didn't cure him of his autism, but they certainly seemed to ameliorate his symptoms to the extent that his autism is no longer an issue. But remember, we never abandoned Western therapies.
The Horse Boy
- When: Tuesday, November 24, 2009, 7:30 p.m.
- Where: UCSB's Campbell Hall, 574 Mesa Rd., Santa Barbara
- Cost: $5 - $6
- Age limit: Not available
Full event details
Do you recommend vision quests for other autistic kids? What I'd recommend is that you follow the interests of the child. I was trying to keep Rowan away from horses and he took himself to the horses. So for Rowan, it was nature and animals, but for another child it could be something else. Follow that and you'll get good results. Nature also definitely helps to calm down over-stimulated nervous systems, so doing therapies in nature might get a better response.
Do you see the West embracing more alternative therapies? I think so. The parents do it first and then the establishment buys in, rather than the other way around. Parents will try pretty much anything that they see working for another parent, and all the best information comes from other parents. Most of the information that comes from professionals tends to be conflicting:. Parents are willing to get creative:
Science and the establishment are scrambling to catch up with this pandemic of autism. There's a limit on how much they can know. Thanks to the interaction between parents and the scientific establishment, we'll understand a lot more about it 30 years from now. Parents are being very creative and embracing such things as nature, not because they're taking a philosophical position but because it gets results.
Did the Mongolians understand what autism is? They're quite savvy about it. They might have a different way of expressing it, saying that his mind has not yet come together. Their diagnoses are often close to Western diagnoses. For example, when they are saying "ancestor spirits," you first think, "Oh gosh, that's way out there." But if you think about it again, it's a metaphor for genetics. When they say something like "black energy entered the womb," you first think "how outlandish." But we know there is a strong connection with environmental toxins - Rowan has been treated for heavy metals, and his levels were very high, and that is common in autistic kids. Suddenly you realize and understand that it's slightly different language, but in a way that two different sets of professionals are looking at the same thing. It's not really miles and miles away from each other. Also, they're whole attitude toward autism is different - they regard it as a qualification for a job, not a disqualification from society.
Your film reveals that what Americans might call a disability can actually be seen positively by other cultures. Do you see that understanding growing in the West? More and more. One of the difficulties is, what does one mean when talking about Western society? Western society is quite polarized. Are we talking about Dick Cheney and the Christian right, or educated liberals? Across the board, I sense that we are seeing a shift. One of the interesting things is that quite a lot of the positive reactions have come from Christians, and this has surprised me. I thought they would be quite dismissive of these things, but actually, most of the hypnotherapy and equine therapy are run by Christians. I think that they don't have a problem with the idea of the irrational complementing the rational, even if their idea of irrational might be very specific. This is not the rabid end, but the more educated middle.
Ironically, some of our most damning criticisms are from people within the educated liberal community. I didn't expect that - them saying this is all mumbo jumbo, that we're giving false hope, that we're exploiting our child. I was quite surprised by that.
My response is: You guys clearly aren't autistic parents. If you get a good result, you want people to make it public, even if you don't use every aspect of it. If someone finds a successful therapy, I want to know about it.
4•1•1
The Horse Boy screens at UCSB's Campbell Hall on Tuesday, November 24 at 7:30 p.m. Call 893-3535 for tickets. For more info, visit horseboyfoundation.org.
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Autism? Google: brainguard.com and view before and after MRI's and facial expressions of children vaccinated. The overwhelming clinical and scientific data shows all humans, adults and children, suffer mild to severe strokes after vaccination due to the additives squaline, aluminum, mercury and the live viruses. The only people who support vaccinations, including doctors, have not done their homework but are following the AMA, CDC line.
contactjohn (anonymous profile)
November 19, 2009 at 2:45 a.m. (Suggest removal)
"First of all, "Though no one knows exactly why, it's pretty clear that more kids are being diagnosed with autism these days than ever before." FAIL: there is broad based consensus among researchers that the increase is almost entirely due to better diagnosis and a broadening of the definition of autism spectrum disorder. See link:
http://www.ncbi.nlm.nih.gov/pubmed/18...
contactjohn is drinking the Jenny McCarthy kool-aid. "The overwhelming clinical scientific data ..." and he links to braingaurd.com. LMAO. Pro-tip: if you expect to be taken seriously in a debate about science don't link to quack websites. He then attacks nearly every legitimate physician and insists that they're not doing "their homework." Oh the irony!
If you're interested in reading an excellent summarization, with citations, of all of the legitimate studies, wait for it .... showing no connection to autism (shocker!), please follow this link.
http://sciencebasedmedicine.org/refer...
FightWoo (anonymous profile)
November 19, 2009 at 9:38 a.m. (Suggest removal)
I had a smigen of hope before I dove into this article that the Indy would avoid making egregious errors and inject some actual science into this discussion, but I am sadly dissapointed.
I honestly empathize with the parents of children with autism, that doesn't prevent me from calling them out for being suckered by the anit-vaxx loons. It pains me a great deal that this "heavy metal" nonsense has infiltrated the psyche of these parents.
"Rowan has been treated for heavy metals, and his levels were very high, and that is common in autistic kids." FAIL: here is a link to another study, in a long line of studies, showing no connection between mercury and autism.
http://www.ehponline.org/members/2009...
I understand parents of children with autism get to the "I'll try anything" point but it is important that we educate people about REAL SCIENCE and not allow celebrities and psuedoscientific nonsense to muddy their perspective. Behavioral therapies, when isolated in clinical trials, have been the most successful at improving socialization in children with autism.
FightWoo (anonymous profile)
November 19, 2009 at 9:59 a.m. (Suggest removal)
Fightwoo needs to do go to brainguard.com and watch the video which shows clinical proof of strokes in children and adults after vaccinations before regurgitating the party line of the AMA, CDC and Big Pharma. Fightwoo answered the post before doing what was pleaded... become informed. MRI's do not lie and the SCIENCE is overwhelming. No, I do not drink Kool Aid because more than likely it contains aspartame, something else I do not partake, due to research not follow the herd mentality.
contactjohn (anonymous profile)
November 19, 2009 at 10:47 a.m. (Suggest removal)
Finally woo guess who funds http://www.ncbi.nlm.nih.gov/pubmed/18384... and http://www.ehponline.org/members/2009...
Do you suppose you are the one being lied to and who chooses safety for your world view in government funded status quo. The blanket term quack website is the same as the term conspiracy which those who have studied the issue know the most ridiculous government funded conspiracy theory is the 911 Commission Report. So FYI google 911patriots.org and look at those "quacks"! Maybe you'll awake from your slumber.
contactjohn (anonymous profile)
November 19, 2009 at 10:56 a.m. (Suggest removal)
The conspiracy quack reveals himself! Oh goody. When people reach their conclusions without the use of reason it is impossible to reason with them, but for the readers, I'll try my best.
I'm sure contactjohn is prepared to rebut every study that conflicts with his baseless conclusions with the "it allz a big conspiraseez" assertion. By that rationale, every field of research is corrupt because they are subject to receiving grant funding. I'm sure you've never taken medication in your life because all the clinical trials that show such and such works are biased. This entire line of reasoning that "big pharma" is corrupt and all out for profit ignores the fact that alt-med industry, which doesn't have to produce any scientific studies, nor are they subject to FDA regulations, nor any standards of medicine, reeps billions of dollars off smucks like contactjohn.
As for the brainguard woo-woo. You clearly have no conception of what "clinical evidence" means exactly. If I may be so bold, I would assert that you literally have no idea what the hell you are talking about. When Dr. Moulden can produce a peer reviewed study I'll entertain the possiblity that he has something to contribute to the field of science as opposed to his obvious goal of shameless self promotion.
FightWoo (anonymous profile)
November 19, 2009 at 11:55 a.m. (Suggest removal)
Took me a bit, but I finally found it.
http://scienceblogs.com/insolence/200...
LMAO
FightWoo (anonymous profile)
November 19, 2009 at 12:12 p.m. (Suggest removal)
@contactjohn, I have worked with children with autism for the past 5 years and have a reasonable amount of knowledge regarding possible causes and treatment. Your statements are not informed and, IMO, irresponsible.
What is your personal experience with autism? What training do you have regarding the prevention or treatment of autism? What is your educational background in medicine? What qualifications do you have that allow you to make statements such as, "The overwhelming clinical and scientific data shows all humans, adults and children, suffer mild to severe strokes after vaccination due to the additives squaline, aluminum, mercury and the live viruses."? The reference provided is rather dubious.
Autism existed prior to vaccination and continues to occur in countries that do not vaccinate or stopped vaccinating (http://14studies.org/pdf/MMR_5.pdf). Also, there is evidence that congenital rubella (the "R" in "MMR") leads to higher incidence of autism (Chess, 1971). So, it is possible that autism incidence could increase if vaccinations were discontinued.
Some Studies:
Retrospective study looking at over 100,000 children who received vaccines with thimerosal (ethylmercury not "methylmercury"). No statistically significant relationship was found between thimerosal exposure and developmental disorders.
http://pediatrics.aappublications.org...
Retrospective study looking at over 14,000 children who received vaccines with thimerosal. No statistically significant relationship was found between vaccines and developmental disorders.
http://pediatrics.aappublications.org...
Here's a study that attempted to find a causal relationship between thimerosal and pervasive developmental disorder (bucket term for children who are on the autism spectrum but don't fit the criteria neatly to be diagnosed with autism, asperger, etc.). No causal relationship was found between thimerosal exposure and PDD.
http://pediatrics.aappublications.org...
Parker et al., 2004 stated in their meta-analysis that, "Studies do not demonstrate a link between thimerosal-containing vaccines and ASD, and the pharmacokinetics of ethylmercury make such an association less likely. Epidemiologic studies that support a link demonstrated significant design flaws that invalidate their conclusions. Evidence does not support a change in the standard of practice with regard to administration of thimerosal-containing vaccines in areas of the world where they are used."
http://pediatrics.aappublications.org...
I look forward to your response which will undoubtedly implore me to "wake up". I implore you in advance to "read up" before you talk about things that you don't fully understand, no matter how much fun it is to toy with the emotions of families who are dealing with this disorder.
Kingprawn (anonymous profile)
November 19, 2009 at 4:05 p.m. (Suggest removal)
The autism rate for U.S. children is 1 in 166, according to the federal government. The autism rate for the Amish around Middlefield, Ohio, is 1 in 15,000, according to Dr. Heng Wang.
He means that literally: Of 15,000 Amish who live near Middlefield, Wang is aware of just one who has autism. If that figure is anywhere near correct, the autism rate in that community is astonishingly low.
Gee I wonder why?
contactjohn (anonymous profile)
November 19, 2009 at 9:17 p.m. (Suggest removal)
You make this too easy, "contactjohn."
You are correct the autism rates in Amish communities in Pennsylvania are very low.
It also seems that 70% of the communities vaccinate as well.
"The idea that the Amish do not vaccinate their children is untrue," says Dr. Kevin Strauss, MD, a pediatrician at the CSC. "We run a weekly vaccination clinic and it's very busy." He says Amish vaccinations rates are lower than the general population's, but younger Amish are more likely to be vaccinated than older generations.
"Strauss also sees plenty of Amish children showing symptoms of autism. "Autism isn't a diagnosis - it's a description of behavior. We see autistic behaviors along with seizure disorders or mental retardation or a genetic disorder, where the autism is part of a more complicated clinical spectrum." Fragile X syndrome and Retts is also common among the clinic's patients."
So, "contactjohn" to help you read someone other than Dan Olmstead, here's some links for you:
http://autism.about.com/b/2008/04/23/...
http://combatingautismfromwithin.blog...
and a very recent one:
http://autism.suite101.com/article.cf...
binky (anonymous profile)
November 19, 2009 at 10:12 p.m. (Suggest removal)
"Of 15,000 Amish who live near Middlefield, Wang is AWARE (emphasis mine) of just one who has autism." @contactjohn
The lack of autism in Amish populations is an old myth that was addressed several years ago. I assume you've also read the Olmsted article from the Washington Post that was debunked by some of the physicians that treat the Amish communities. The Amish have autism, and it is documented.
http://autism.suite101.com/article.cf...
http://combatingautismfromwithin.blog...
Did you read the Japanese study I posted above? The population discussed in that article didn't vaccinate for several years and the incidence of autism continued to rise.
You addressed funding of research and possible conflicts of interest above. What do you know about the funding that Dr. Andrew Wakefield received to conduct the infamous Lancet "study" from 1998 that is responsible for the linking of vaccines and autism? Did you know that he reportedly received funding from parents who believed that vaccines caused autism in their own children? What do you think those parents wanted Dr. Wakefield to "discover"?
I realize you're being glib, but you really should wonder what causes autism. The level of understanding displayed in your comments about this topic suggests that you should be asking more questions rather than providing answers. You have not proven yourself to be qualified to make the claims that you have made so far.
I'm still curious about your background in research methods and design, medicine, child development, behavioral psychology, educational psychology...in other words, why do you consider yourself an expert in autism epidemiology?
Kingprawn (anonymous profile)
November 19, 2009 at 10:28 p.m. (Suggest removal)
@Binky,
Good on ya. Your post wasn't up when I posted. I think in this case, reiteration is a good thing.
Kingprawn (anonymous profile)
November 19, 2009 at 10:33 p.m. (Suggest removal)
It appears the same agenda is behind all of the pro vaccination efforts which shout down any earnest endeavor to find an explanation and do not provide any, repeat any, explanation as to the rise in autism.
The doctor at brainguard.com has a very good presentation regarding MRI's. He also is an MD with two advanced degrees and a Phd in neuro cognitive behavior. Dr Mary Megason on her site writes: "When these children get the MMR vaccine, their vitamin A stores are depleted and they cannot compensate for blocked pathways. Lack of vitamin A, which has been called "the anti-infective agent," leaves them immunosuppressed. They lack cell-mediated immunity. T cell activation, important for long term immune memory, requires 14-hydroxy retro-retinol. On cod liver oil, the only natural source of this natural substance, the children get well. The parasympathetic nervous system is blocked by the second G protein defect". Kids are up to 68 different cocktails of vaccinations with 8 the minute they are born? That doesn't resonate with you? In other words thinking out of the Big Pharma box which controls everything you see in the mainstream media is the starting point. I have read of doctors who vaccinated their children and watched them descend into autism, one after the other, and there is no link? As far as the conspiracy mentality do me a favor before you answer, go to 911patriot.org and look at those people, Gen Wesley Clarke among them "quacks" who challenge the status quo of 911. The same mindset applies to autism with the same stonewalling. There is a lot of money at stake if the truth is ever becomes mainstream about the fallacy of vaccinations. Google simian virus 40 and have a look at that research regarding vaccinations and cancer, all denied by the establishment. Remember first they laugh at you, then they ridicule you, then you win.
contactjohn (anonymous profile)
November 19, 2009 at 11:47 p.m. (Suggest removal)
@contactjohn,
You have demonstrated limited knowledge of one side of the debate. You have joined a "herd" whose arguments are predicated on a single dubious study conducted in 1998 that could not be replicated and a few websites rife with anecdotal, unsubstantiated data run by opportunists who are benefiting financially by providing false hope to families dealing with the challenge of autism. This appears, IMO, to be a case of capitalism vs. science.
I've seen the damage these bloodsuckers (DAN!) cause to families dealing with autism first hand. I've had patients whose families spent a fortune on unsuccessful chelation therapy and vitamin therapy.
@contactjohn, how do you explain my anecdotes that contrast sharply with those prevalent in your reference? What experiences have you had with children on the spectrum? Do you have any experience with children who haven't been vaccinated but have autism?
Since you haven't responded to questions challenging your qualifications and "expert" status, and don't appear to have read any of the links provided by myself and others, any further dialogue would be futile at this time. We must assume that you are not qualified to make any definitive statements regarding possible causes of autism or conspiracies to cover-up said causes. You have not earned the right to be taken seriously.
Kingprawn (anonymous profile)
November 20, 2009 at 8:19 a.m. (Suggest removal)
Finally for your "limited knowledge" Google: "Baxter International bio weapons". In May Baxter was caught putting live H1n1 virus into flu vaccinations at their Austrian facility. The company sent the batches to 18 laboratories in Eastern Europe which would have been used to make flu shots. Unfortunately for Baxter a lab worker in Checkoslovakia followed procedure and injected them into ferrets who all died and raised the alarm. Is this a mistake? Now H1N1 is a level 5 bio hazard and is kept in a completely separate lab under strict rules of handling. In other words it is impossible to mix H1N1 with normal seasonal flu. You obviously have no knowledge of the smallpox vaccinations in Africa administered by WHO that resulted in the outbreaks of AIDS which has been tracked by European investigative journalist (The Guardian) who mapped the spread of the pandemic which shows outward infection from the five vaccinations sites. In other words you are looking through the very safe in yet completely uninformed viewpoint of studies that are funded and manipulated by the same global power elite through NIH, American Cancer Assocaition, CDC who have used vaccinations since they 1950's, the SV40 fiasco among them, to infect the American Public. Those highly toxic vaccinations were administered on up into until 1990's with full knowledge by the government that the vaccines were contaminated and that Simian Virus 40 causes cancer in humans. So being qualified in this group Kingfisher is akin operating a one armed machine in the dark. I do not expect you to goggle Baxter even though all of this is true, all painstakingly documented and not funded by NIH, American Cancer Association, CDC, AMA or Big Pharma. Big Pharma has a vested interest in keeping people like yourself promoting their homicidal agenda by saying that vaccinations are safe and Autism is not caused by neurotoxic ingredients. But it is the children they are targeting so you might want to weigh your responsibility here.
contactjohn (anonymous profile)
November 20, 2009 at 10:27 a.m. (Suggest removal)
Well said, Kingprawn.
"contactjohn" doesn't know when he's bested, rather like the Black Knight in Monty Python's "Holy Grail."
'It's is but a scratch,'
'A»¿ scratch! Your arms off!'
'No it isn't!'
'Than what's that?!"
"I've had worse!'
http://www.youtube.com/watch?v=zKhEw7...
binky (anonymous profile)
November 20, 2009 at 10:40 a.m. (Suggest removal)
@contactjohn,
It's Kingprawn not "Kingfisher". By resorting to name calling you've forfeited any chance to win this argument.
How disrespectful and disengenuous are you?
@Binky, great reference!
Kingprawn (anonymous profile)
November 20, 2009 at 11:27 a.m. (Suggest removal)
Baxter's seasonal flu cultures were in fact contaminated with avian flu (H5N1), which somehow wound up being detected before they were used to manufacture vaccines. This discovery was most likely due to a lapse in the vast worldwide medical conspiracy. Bummer.
FightWoo (anonymous profile)
November 20, 2009 at 11:46 a.m. (Suggest removal)
Instead of arguing over the cause, how about reflecting on one family's success in focusing on their child's needs and interests and finding ways to free him of the negative and crippling effects of autism while preserving his unique character and personality, helping him blossom into a happy healthy person? Regardless of how you believe Rowan or any other child came to his or her circumstances, whether autistic or not, this is a touching story of healing....wouldn't we all go to the ends of the earth for our child? I know I would.
Birrrd (anonymous profile)
November 20, 2009 at 9:55 p.m. (Suggest removal)
sorry Kingprawn I meant no disrespect I wasn't paying attention. I apologise...
contactjohn (anonymous profile)
November 21, 2009 at 3:23 a.m. (Suggest removal)
Denial all around. Nietzsche was right the sheep don't want to know the truth, it upsets their world.
contactjohn (anonymous profile)
November 21, 2009 at 3:26 a.m. (Suggest removal)
@contactjohn
I wanted to accept your apology, but then you resorted to name calling again by referring to those opposed to your viewpoint as, "sheep". I'm confused by your behavior. Your comments suggest that you are a compassionate person who believes strongly that autism can be cured through the elimination of vaccinations. That's great! I want autism to be cured as well. I don't feel, however, that the current data supports your conclusion(s). That's okay isn't it? Telling people that they are in denial, are acting like sheep, or need to "wake up" is dismissive and does nothing to support your point of view.
@Birrrd
Your comment is excellent.
Kingprawn (anonymous profile)
November 21, 2009 at 7:16 a.m. (Suggest removal)
Oh come on, calling somebody a "sheep" has got to be one of the least derogatory things I've ever heard. Then you look at your friend Fightwoo's posts and we get the name "anti-vaxx loons". Now which one do you think is worse??
You guys are right, mercury is great for us, we should inject mercury into our veins every day. We should also inject tuna fish sandwiches into our veins.
There's no way that the medical industrial complex would want to pull a multi-billion dollar scam on the American people. Go back to sleep, sheep. Oh, and maybe you should move somewhere that fluoridates their water supply if you're so enthralled with the establishment's BS science.
loonpt (anonymous profile)
November 23, 2009 at 11:08 a.m. (Suggest removal)
The adequately named "loonpt" comes out of his kooky cave to join the anti-science fray. It may come as a surprise to you loonpt, but Kingprawn and I are two different individuals, with, surprise surprise, two different approaches to combating the war on science. While Kingprawn and binky have made the attempt to politely address contactjohn's concerns and have succesfully rebuted his baseless conclusions with reputable peer reviewed studies, I on the other hand have no qualms about calling him a quack.
As is clearly evidenced in the long thread above us, there is no reasoning with quacks, cranks, kooks and loons. Kingprawn, binky and myself have made the effort to supply contactjohn with evidence and he has responded with nothing but special pleading. You and those of your ilk have the ill conceived notion that western medicine (aka legitimate science-based medicine) is run by crooks and liars and conspires with global governments, non-profit institutions and medical research firms to suppress evidence. This is nothing but bold-faced conspiracy mongering and needs to be called out for what it is, denialism crankery.
For you to describe following the recommendations of hundreds of scientific studies showing the safety and efficacy of vaccines the behavior of "sheep" is tantamount to calling us sheep for believing that the earth is spherical.
FightWoo (anonymous profile)
November 23, 2009 at 12:16 p.m. (Suggest removal)
@loonpt
Would you like to be called a, "a timid docile person; especially : one easily influenced or led" (Merriam-Webster, 2009)? Maybe you would. I don't know you.
IMO, the use of name-calling in debate to diminish the arguments of the opposition demonstrates a lack of intellectual integrity. My experience with the debate of controversial topics has lead me to believe that it is common for passionate people to use certain relatively predictable tactics when emotion overrides the desire or ability to provide a reasonable response.
Kingprawn (anonymous profile)
November 23, 2009 at 1:23 p.m. (Suggest removal)
I would just as soon call someone a loon for questioning the holocaust, the moon landing or the theory of gravity. Being hesistant to do so is, IMO, partly to blame for the ubiquity of anti- or psuedo-scientific beliefs. Reasonable doubts and skepticism are always healthy, but this "debate" involves neither.
Quackery, as it is defined in Webster, is in actuality a fair assessment of the anti-vaccination movement in general and the opinions of contactjohn (re: autism, vaccines, etc.) specifically.
FightWoo (anonymous profile)
November 23, 2009 at 2:37 p.m. (Suggest removal)