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    Roger Thompson

    Paul Wellman

    Roger Thompson


    A Daily Battle

    Citizen Fights for Understanding of the Mentally Ill, While Coping with His Own Disorder


    Thursday, December 10, 2009
    By Chris Meagher (Contact)
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    It’s a Monday evening and the halls of Santa Barbara Cottage Hospital are beginning to quiet down. Up in psychiatric, patients have just been served their supper, accompanied by a slice of pie, chocolate milk, and coffee, on a tray in their rooms.

    Roger Thompson, 28, is sitting in his room on his plain bed, while another bed sits unused. He is surrounded by pink walls, one of which has two paintings screwed into it. Wearing a white T-shirt and jeans, Thompson finds himself in a remarkably different atmosphere than just 72 hours ago, when he was sitting in the center seat of a six-person panel in front of a packed room at the Santa Barbara Central Library’s Faulkner Gallery. There, dressed in a sharp suit, he addressed the 200 or so people in attendance, attempting to answer their questions about the mentally ill and the homeless in Santa Barbara County.

    Consumer Advocacy Coalition Founder Roger Thompson
    Click to enlarge photo

    Paul Wellman

    Consumer Advocacy Coalition Founder Roger Thompson

    Thompson was doing the same in his hospital room Monday evening-despite the scenery change-filing and organizing note cards with audience questions from Friday’s forum. Dozens of questions were written down on cards, but the forum only allowed for a handful to be answered. Thompson, diagnosed with bipolar disorder, had promised an answer to all the questions asked, and he was making certain he did. To both a hospital visitor and the packed forum he said the same thing: “We may not have all the answers, but at least we can start asking the questions.”

    The search for answers and reform has been behind Thompson’s activities for the past year, as well as the formation of the Consumer Advocacy Coalition (CAC) -the group that put on Friday’s town hall meeting. Thompson and CAC, which he helms as executive director, have been the face of a paradigm shift within the county’s embattled and often beleaguered mental health realm.

    Just Tuesday morning came news that yet another homeless man-the 28th this year- had died in the bitter cold brought about in recent days. And just as when Thompson began his fight more than a year ago, when services provided to him for his bipolar disorder were threatened, budgetary issues have put the squeeze on the state and the county, continually threatening treatment and funding.

    Alcohol, Drug and Mental Health Services (ADMHS) officials were supposed to give an update to the supervisors Tuesday, but held off to try to get a better grasp on the financial situation. The county is playing catch-up from bad billing practices extending back to the 2002-2003 fiscal year, potentially to the tune of more than $30 million. Appeals are currently ongoing, as are negotiations with the state. And this comes after consecutive years of devastating cuts of millions of dollars to the department.

    “If we only had to worry about the future, I’d say we’d be in much better shape,” he explained.

    Federal economic stimulus money, however, has provided a small boost, helping offset some of the cuts. Last year, ADMHS received about $3 million, this year it’s expecting $4 million and will probably receive around $2 million next year in federal stimulus money, according to County Auditor-Controller Bob Geis. “If we only had to worry about the future, I’d say we’d be in much better shape,” he explained.

    CAC has been a bright light in the mental health community, leading the quest to reform and improve mental health services and inform the public about mental health issues. A nonprofit with a growing list of hundreds of members composed of both mental health clients and non, CAC spurred the opposition to Proposition 1E, which would have shifted money from the state’s mental health funding to the state’s general fund. It was CAC that made poetry, writing, women’s, and computer groups for clients free after they had been cut because of cost. And it’s CAC that has been holding forums about homelessness and mental health issues, keeping the discussion in the forefront. “My feeling is that it takes the entire community to address problems like this,” said Thompson.

    But at the vanguard of CAC is the belief that individuals with mental illness should be empowered, that they themselves can fight off stigma. It’s a model of caring with the mentally ill instead of for the mentally ill. New levels of respect and understanding of the abilities of people with mental illness are being reached. And the idea, one of the first of its kind in Santa Barbara County, seems to be working.

    That concept was on display Friday where dozens of volunteers, mentally ill or otherwise, showed what CAC had become. Panelists informed attendees about how getting people into permanent housing is a great way to combat homelessness, how public and private funding need to be utilized to offset the budget situation, and how a high percentage of homeless people have mental illnesses. Childcare, sign language, Spanish interpretation, and press packets were also made available to the 200 people who packed the Faulkner Gallery; it was standing room only on the night of the holiday parade just down the street.

    Thompson understands, better than most, the challenges faced by the mentally ill in Santa Barbara County. The baby-faced Salinas native moved to Santa Barbara to go to UCSB on a regent’s scholarship. He graduated at the top of his class, started a company, and purchased a home. Two years ago, at the age of 26, he was diagnosed as severely bipolar. He went through a divorce, a foreclosure, and abandonment. But now, collecting a check from the government and living in a small, subsidized studio apartment, Thompson is leading the charge even as he deals with his illness.

    Photo Gallery

    Homeless and Mental Illness Meeting

    Enlarge photos | View thumbnails

    Those who know him say he does a good job at recognizing his illness and taking care of himself when he needs to, as he did this time, voluntarily checking himself into the hospital Sunday. “I became aware enough to recognize the symptoms,” explained Thompson. For example, his first day on the Mental Health Commission, he had just gotten out of Ventura County’s Vista del Mar psychiatric hospital. It was on the same day that mental health leaders held a press conference-the first in the state-opposing Proposition 1E. “He’s fighting to grow this organization,” explained Barry Schoer, executive director of Sanctuary Psychiatric Centers, “but at the same time fighting the daily trials and tribulations of his illness.”

    Though meant to oversee and regulate everything to do with mental health, the Mental Health Commission had in recent years become stagnant, providing only a rubber stamp approval of anything coming out of ADMHS, according to several observers, clients, and directors of community-based organizations.

    In a much talked-about move, 3rd District Supervisor Doreen Farr chose Thompson for a commission position over long-time commissioner Ann Eldridge, who was also the South Coast president of the National Alliance on Mental Illness (NAMI). Farr said she was impressed with his story, his intelligence, his enthusiasm, and his drive, and his time on the commission has only reaffirmed her choice. “The Mental Health Commission has been reinvigorated by Roger’s appointment as well as other people,” Farr said. “There’s no question he’s been a great addition.”

    Thompson has kick-started the commission to start up defunct MHC committees, and serves on one dedicated to consumers. Most recently, a legal opinion from County Counsel was going to up the number of commissioners and alternates required for a quorum, making it more difficult for the commission to meet and make decisions. Thompson, however, sought out and obtained a legal opinion from a NAMI attorney, and County Counsel rescinded its opinion.

    And so the discussion continues, but with advocates and empowered mental health clients speaking a little louder these days, the hope is that walls will be broken down and knowledge gained. “It’s repeating the same message over and over and over until we drill the message into people’s heads,” Thompson said. “Once it’s there, the stigma [that follows the mentally ill] will be reduced.”

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    Comments

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    Wonderful article that describes the Catch 22 situation that the most marginalized members of our community are forced to endure each and every day. Thank you for printing this article and taking the time to interview Roger. His commitment to improving the quality of his personal life, as well as the life of those who struggle with severe mental illness and homelessness, is a privilege to witness.

    Together we can make the changes that need to take place ... YES WE CAN!

    ilovecats (anonymous profile)
    December 10, 2009 at 9:56 a.m. (Suggest removal)

    The first question raised was "What can we do for the homeless?"

    The question is what can the homeless do for us?

    The attitude I saw was a patronizing one. The first thing you can do for the homeless is get them registered to vote. The second thing you can do is treat them as first class citizens in a first class country. That means, end the persecution and discrimination of ticketing sleeping people. The law that says sleeping is a crime is a crime.

    It also means stop treating them as if they were living an aberrant life and it is your job to change them to be like you. 200 years ago homeless people living in teepees were not considered strange.

    The reason many homeless people avoid institutions like Casa E and the others is the extreme dehumanization that has to be incurred. Why is that someone sleeping at the Double Tree at $500 a night wanders around without being limited to access and egress. Yet, right across the tracks, they both listen to the same train going through the night, the Casa folks cannot have access to a bed except at a certain time in the afternoon and cannot go to bed for the night except at certain regulated hours.

    The Casa E has meetings where residents can voice their opinion. It is patronizing since no advice is taken or enacted. Put some of the residents on the board. You want them to become equals, treat them as equals. Ditto for any of the town's shelters.

    The Casa E is intolerant of competition and wants to be the big boy on the block. It runs out of town any attempt at other organizations to tap into its usual sources of contributed food.

    The Rescue Mission treats you like cattle, shoving you through mass showers and brain numbing lectures that you must go through to eat or sleep.

    The Salvation Army also has a mandatory brain washing routine. One staff member there has more challenges than the people he regulates seeing any challenge to rules as a hostile act accompanied by punishment for no wrong done.

    The Salvation Army also violates their agreement with the Veterans Administration by placing conditions on the use of the beds set aside for veterans. The SA will only let a veteran use the bed if he is going to be a long time resident. A day or a week long veteran is turned away. I was.

    I also lambaste the Veterans Administration for its discriminatory practices in reviewing claims that are by law due a veteran. A long story that you a spared here, but one that makes a difference in whether you are on the street or in a home, existing or living.

    The answer to the question, "What can we do for the homeless," is get a new attitude. Do what a homeless person does. Abandon your family and go live in one of the local shelters for two weeks. What is now cunning and baffling with become intuitively clear.

    Bird (anonymous profile)
    December 10, 2009 at noon (Suggest removal)

    I was there too and the first question was actually, "What can we do to prevent the next homeless death?" and that does take the whole community. It also takes people getting together and doing what CAC IS doing which is organizing.

    LC (anonymous profile)
    December 10, 2009 at 12:47 p.m. (Suggest removal)

    Roger, you are my hero. Thank you for all you do.

    sbbombshell (anonymous profile)
    December 11, 2009 at 2:29 p.m. (Suggest removal)

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